Welcome to Our Story

Welcome to our family’s website, where we share the story of our daughter, Grace Davenport, and our experiences with Ogden’s syndrome. Through these pages and our blog, we aim to provide insights into the challenges and realities we face as we navigate life with this rare condition.

Through our page and blog, our goal is to offer information, support, and a sense of community to others who may be on a similar journey. Thank you for joining us as we share our story.

Annoucements

Here you will find latest news, charity events and general announcements

Fun Day at Congleton Cricket Club

Posted: 12/09/2024

We’re organising a Fun Day at Congleton Cricket Club on 6th October 2024, from 11am to 4pm to raise money to support Grace’s needs and give her a dream trip to Disneyland Florida. It’s also a day for families with kids with Special Educational Needs and disabilities to have affordable fun. It’ll be a great day!

But we can’t make The Fun Day happen without your support!

We’re asking for help to make a wish come true!

Donations for the raffle or tombola (anything from sensory toys to a bottle of wine or food).
Sponsorship for activities like sensory play, a reptile show, bouncy castle, BBQ, and more.

Latest Blog Posts

Here you will find links to our latest blog posts

Walking Snowdon To Raise Funds for AGD

16/10/2024

My aunt Sarah Buckley and her cleaning company zest cleaning are going to be walking Snowdon on the weekend of the 25th October 2024 I hope they know what they are letting themselves in for. They are doing this to help me out! If there is anyone out there that could help with items for…

Fun Day For All

05/10/2024

We couldn’t have asked for a better day it was great to see the community getting together this day wasn’t just about grace it was about all families having a great day which everyone help to raise £1600 on the day. We would like to thank everyone involved and a special thanks to the sponsors…

Bramblewood Caravan Park

13/09/2024

This past weekend we went to Bramblewood Caravan Park with the Saxon Crosses Caravan and Camping Club. What a great weekend we all had! Bramblewood Caravan Park | caravanning and camping in shropshire This weekend we loaded up the caravan for our last event this year with the club it started with my brother and…

Children’s Hospice

13/09/2024

Today was my first day at the children’s hospice. I had a lovely lady looking after me, mummy daddy and George joined in with my music session. Everyone was so kind and caring! It was such a nice place to be. So many things to see. I liked the different coloured bubbly water tubes. My…