Welcome to Our Story

Welcome to our family’s website, where we share the story of our daughter, Grace Davenport, and our experiences with Ogden’s syndrome. Through these pages and our blog, we aim to provide insights into the challenges and realities we face as we navigate life with this rare condition.

Through our page and blog, our goal is to offer information, support, and a sense of community to others who may be on a similar journey. Thank you for joining us as we share our story.

Annoucements

Here you will find latest news, charity events and general announcements

Fun Day at Congleton Cricket Club

Posted: 12/09/2024

We’re organising a Fun Day at Congleton Cricket Club on 6th October 2024, from 11am to 4pm to raise money to support Grace’s needs and give her a dream trip to Disneyland Florida. It’s also a day for families with kids with Special Educational Needs and disabilities to have affordable fun. It’ll be a great day!

But we can’t make The Fun Day happen without your support!

We’re asking for help to make a wish come true!

Donations for the raffle or tombola (anything from sensory toys to a bottle of wine or food).
Sponsorship for activities like sensory play, a reptile show, bouncy castle, BBQ, and more.

Latest Blog Posts

Here you will find links to our latest blog posts

Bramblewood Caravan Park

13/09/2024

This past weekend we went to Bramblewood Caravan Park with the Saxon Crosses Caravan and Camping Club. What a great weekend we all had! Bramblewood Caravan Park | caravanning and camping in shropshire This weekend we loaded up the caravan for our last event this year with the club it started with my brother and…

Children’s Hospice

13/09/2024

Today was my first day at the children’s hospice. I had a lovely lady looking after me, mummy daddy and George joined in with my music session. Everyone was so kind and caring! It was such a nice place to be. So many things to see. I liked the different coloured bubbly water tubes. My…

Visit to Dougie Mac Children’s Hospital

15/08/2024

Dougie Mac children’s hospice, I went on Saturday, Me Amazing Grace Davenport took it all in my stride, the staff and other children were amazing. But mummy is having a struggle since visiting, she feels like she has let me down as her mummy, I have a life limiting syndrome and it really has made…

Happy Birthday Grace!

27/07/2024

Happy Third Birthday to our Amazing Grace Davenport!Wishing you a wonderful day of smiles and hugs!With love Mummy, Daddy, George & Stanley. If anyone would to give her a birthday gifted, could you please kindly donate to her just giving page: https://www.justgiving.com/crowdfunding/Claire-amazinggrace