Welcome to Our Story

Welcome to our family’s website, where we share the story of our daughter, Grace Davenport, and our experiences with Ogden’s syndrome. Through these pages and our blog, we aim to provide insights into the challenges and realities we face as we navigate life with this rare condition.

Through our page and blog, our goal is to offer information, support, and a sense of community to others who may be on a similar journey. Thank you for joining us as we share our story.

Annoucements

Here you will find latest news, charity events and general announcements

A Big Thank You

Posted: 27/02/2025

Thank you to The Hair Gallery for having Grace in while mummy had her hair done.

Latest Blog Posts

Here you will find links to our latest blog posts

Happy 80th Nana

11/03/2025

Happy 80th Nana! Wishing you a wonderful day, see you soon Amazing Grace Davenport xxx

Happy birthday Adam Partridge

28/02/2025

Adam Partridge thank you for everything you do and have done for our family xxx have an amazing day xx Love & massive hugs Claire, Eddie and George but especially Grace who absolutely adores you, the little lady who you named & started her own legacy “Amazing Grace” xxxx

Heath Farm Congleton, Wacky Warehouse

21/02/2025

Amazing Grace Davenport anyone been over to Heath Farm Congleton, Wacky Warehouse lately ?? Well if you do please keep a look out for these signs xx Heath farm are kindly helping us reach our goal for Grace xx we often visit Heath Farm, Greene King Pub & Carvery the children love the soft play…

Update on Grace

06/02/2025

Update on Grace she's a little brighter, her lymph nodes are still swollen so we will see what the bloods say once she has them xx thank you everyone who is supporting her, xx we had a little outing over the past few days xxx