Charities & Support Groups

We've put together a list of charities and support groups. These charities and professional organisation provide support to families with children affected by Ogden's syndrome.

  • Kidz to Adultz Exhibitions

    Kidz to Adultz events are dedicated to children and young adults with disabilities and additional needs, their parents, carers, and the professionals who support them. Since the events were established in 2001, we have welcomed tens of thousands of visitors through the doors who have been able to access the most up to date information and advice on equipment, products and services for children and young adults with disabilities and additional needs.

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  • Ruby’s

    The mission of Ruby’s is to provide life changing support by means of specialist facilities and opportunities for children with Special Educational Needs and Disabilities (SEND) and their families, who live in Cheshire East

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  • We Are NAA10 Families Together

    We Are NAA10 Families Together, the patient support organisation for parents & guardians of children affected by mutations to the NAA10 gene.

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  • We Are NAA10 Families Together – Facebook Group

    The Facebook group for the We Are NAA10 Families Together.

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